The “Patient Hub” project encompasses a comprehensive spectrum of actions undertaken by the National Confederation of Patient Associations in Greece, in order to strengthen their extroversion, effectiveness, administrative autonomy, financial sustainability and cooperation.
The patient participation in health is not limited to an individual level, as patients can collectively participate in various levels of decision-making such as health policymaking at national and local level, clinical research, evaluation of health technologies, development of treatment guidelines, awareness campaigns, etc. However, patient representatives have not yet developed the necessary extensive and effective network, as well as the appropriate skills to maximize their impact on health policies and society in general. In this context, the “Patient Hub” is a cooperative, supportive and educational network, with the strategic goal of long-term strengthening the ecosystem of the country’s patient associations and serving health democracy.
The project’s initial network consists of 55 patient groups which are members of the Greek Patient Association.
The actions of the project are developed in the following pillars:
– Networking (Collaborative working space, legal and accounting consulting, networking with other social partners, establishment of new associations)
– Training (Continuous capacity building seminars)
– Communication (Joint campaigns, joint newsletter, web presence)
– Scientific Research as a precondition for evidence-based policy proposals
– Policy interventions developed by the Greek Patients Association, as a result of the above pillars
Among the project’s beneficiaries the following groups are included :
– Patient associations and NGOs in the field of health
– Chronic patients
– Citizens in general and
– Institutions and decision-making processes in health
The Greek Patients Associations is in charge of the actions related to networking, consulting, legal and accounting support services and policy interventions. The project partners include the NGO Humane, which undertakes educational and marketing activities, and the Health Policy Institute, which is the scientific supervisor of the project and will conduct a study to map the ecosystem of the country’s patient groups.